I met with the support group tonight. We all seem to be doing OK. R will probably wait until the new drugs come out to treat again. S is feeling great and still enjoying her SVR status. I'm a little stressed right now with the closing of our property and my mother-in-law going into a nursing home on the same day. I still feel like going through the Hep C stuff made me look at all of life's ups and downs differently. It's all fluid--what's good today can be bad tomorrow. Life changes with a phone call some days. It's keeping it all in perspective that is the hard, however important, part.
Tonight we were going to drive 45 min to another town to meet with a new guy. He canceled this afternoon so we met at the regular place. At least he called. I think the doctor was twisting his arm to meet with us. I met him on Friday when the clinic started a new group of Hep C patients. I agree with the doctor, he could use some company. Oh well. We are here if he wants some help but we can't help people if they don't want it.
Wednesday, August 4, 2010
Sunday, July 25, 2010
There's not a lot to report right now. I'm feeling great. The doctor's office is having a new group start treatment on Friday and asked if I wanted to talk to the group. I'm going to do it. This time I'll remember to bring the list of side effects with me. The last time the nurse from the drug company kept asking me if I had restless sleep. For the life of me, I couldn't remember but when I checked the list, sure enough, I had it on there. Ironically, this coming Friday is when all the Hep C stuff started two years ago. Well, I thought I was having a gall bladder attack and had to get a hotel on the way to DC. Oh, it was so scary driving down the interstate with the kids in the back. Pete was out of town, etc. The pain was so severe. You can read about it here if you like.
I have a lot going on in my life right now. We bought 23 acres and we're trying to get our house ready to sell. I'm so thankful I'm not dealing with the treatment now. Life does go on...
I have a lot going on in my life right now. We bought 23 acres and we're trying to get our house ready to sell. I'm so thankful I'm not dealing with the treatment now. Life does go on...
Saturday, July 10, 2010
2 out of 3
I met with Ron and Sandy on Tuesday this month for our support group meeting. Sandy had some great news: She got SVR!!! I'm so happy for her and her family. Ron starts treatment again in the future so, hopefully, we'll be batting 1000 one of these days.
Sunday, June 6, 2010
Six months in a leaky boat....
I'm running again. I'm up to 45 minutes. I could pick up the pace, but for now, I'm enjoying being out and feeling great. I listen to my iPod while I run and recently I've downloaded some old 80s music. When I was in junior and high schools, I liked pop music from England, Australia and New Zealand. At the time, I didn't realize one of the groups was from NZ--I've just figured that out in the last year or two. But, one of those groups is the Split Enz. I had an old cassette which has long been gone. It occurred to me to look them up on iTunes. I decided to buy some old songs that I used to enjoy. I bought I Got You, History Never Repeats, Six Months in a Leaky Boat, and some others. While I was running the other day, Six Months in a Leaky Boat came on. The lyrics go like this:
When I was a young boy I wanted to sail 'round the world
That's the life for me, living on the sea
Spirit of a sailor circumnavigates the globe
The lust of a pioneer will acknowledge no frontier
I remember you by thunderclap in the sky
Lightning flash, tempers flare, 'round the horn if you dare
I just spent six months in a leaky boat
Lucky just to keep afloat
Aotearoa, rugged individual glisten like a pearl
At the bottom of the world
The tyrany of distance didn't stop the cavalier
So why should it stop me? I'll conquer and stay free
Ah come on all you lads, let's forget and forgive
There's a world to explore
Tales to tell back on shore
I just spent six months in a leaky boat
Six months in a leaky boat
Shipwrecked love can be cruel
Don't be fooled by her kind
There's a wind in my sails, will protect and prevail
I just spent six months in a leaky boat
Nothing to leaky boat
My treatment regimen was six months. Yep, sometimes I felt like I wasn't going to keep afloat. I did, though. I can't describe my feelings when I heard these words as I was running--and running with vigor! I survived the leaky boat. Yes, "there's a wind in my sails, will protect and prevail....."
When I was a young boy I wanted to sail 'round the world
That's the life for me, living on the sea
Spirit of a sailor circumnavigates the globe
The lust of a pioneer will acknowledge no frontier
I remember you by thunderclap in the sky
Lightning flash, tempers flare, 'round the horn if you dare
I just spent six months in a leaky boat
Lucky just to keep afloat
Aotearoa, rugged individual glisten like a pearl
At the bottom of the world
The tyrany of distance didn't stop the cavalier
So why should it stop me? I'll conquer and stay free
Ah come on all you lads, let's forget and forgive
There's a world to explore
Tales to tell back on shore
I just spent six months in a leaky boat
Six months in a leaky boat
Shipwrecked love can be cruel
Don't be fooled by her kind
There's a wind in my sails, will protect and prevail
I just spent six months in a leaky boat
Nothing to leaky boat
My treatment regimen was six months. Yep, sometimes I felt like I wasn't going to keep afloat. I did, though. I can't describe my feelings when I heard these words as I was running--and running with vigor! I survived the leaky boat. Yes, "there's a wind in my sails, will protect and prevail....."
Monday, May 24, 2010
Happy Days are here to stay...
My doctor contacted me the other day to ask if he could pass on my contact info to a newly diagnosed patient. I gladly obliged. The lady contacted me via email and I hope we can chat soon.
I truly believe that things happen for a reason. I survived Hep C treatment and lived to tell about it so that I can be a resource for others. I don't want to waste this opportunity.
OK, now for something trivial. My hair has come back and it is so think. It used to be thick but I kept it short so I didn't realize just how much hair I had! So, I'm covering the gray now and growing it out for something different.
I truly believe that things happen for a reason. I survived Hep C treatment and lived to tell about it so that I can be a resource for others. I don't want to waste this opportunity.
OK, now for something trivial. My hair has come back and it is so think. It used to be thick but I kept it short so I didn't realize just how much hair I had! So, I'm covering the gray now and growing it out for something different.
Monday, May 10, 2010
Hello! Life is just flying by.
I met with my support group last Wednesday. It's still just the three of us. Maybe I should be more aggressive at getting the word out. Not sure. Or maybe most Hep C people don't want an actual physical support group. Still don't know. Nevertheless, it was good to catch up with S and R.
I'm afraid I'm a broken record. I'm still feeling good (except I'm recovering from a cold and the cough is hanging on), still running fairly regularly, and sleeping well. I'm not working much due to the hospital being jerky, but I'm scheduled to work this Friday and two weeks in July. I'm looking into getting out of nuclear medicine. We'll see.
Yeah, life is good (right now)!
I met with my support group last Wednesday. It's still just the three of us. Maybe I should be more aggressive at getting the word out. Not sure. Or maybe most Hep C people don't want an actual physical support group. Still don't know. Nevertheless, it was good to catch up with S and R.
I'm afraid I'm a broken record. I'm still feeling good (except I'm recovering from a cold and the cough is hanging on), still running fairly regularly, and sleeping well. I'm not working much due to the hospital being jerky, but I'm scheduled to work this Friday and two weeks in July. I'm looking into getting out of nuclear medicine. We'll see.
Yeah, life is good (right now)!
Wednesday, April 7, 2010
no more antidepressants!
I am officially weaned off of the antidepressants. It took about two months to slowly come off of the citalopram. I have started exercising a little more often and I hope to lose those pounds I put on.
I have more energy than I have had in years and my mood is great. I'm enjoying every day because I know it's a gift.
Hang in there.
I have more energy than I have had in years and my mood is great. I'm enjoying every day because I know it's a gift.
Hang in there.
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